What are the 4 stages of PSP?

Here is the four stages below in more detail;
  • Early stage: May present via the fracture clinic, falls services, eye specialist or speech and language therapist. ...
  • Mid stage: Many people reach this stage before diagnosis. ...
  • Advanced stage: ...
  • End of life stage:
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What do the final stages of PSP look like?

Advanced stage PSP usually occurs between years three through six. People with PSP have significant problems with walking, muscle stiffness, and pain, often requiring a wheelchair for mobility. They depend on others for most or all care aspects. Vision, speech, and swallowing are significantly impaired.
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How quickly does PSP progress?

The disease usually worsens rapidly and most people with PSP develop severe disability within three to five years of symptom onset. PSP can lead to serious complications such as pneumonia, choking, or head injuries from falls.
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Is PSP considered a terminal illness?

Progressive supranuclear palsy (PSP) is a rare, relentlessly progressive, ultimately fatal neurodegenerative brain disease.
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What are the first signs of Progressive Supranuclear Palsy?

Early symptoms
  • sudden loss of balance when walking that usually results in repeated falls, often backwards.
  • muscle stiffness, particularly in the neck.
  • extreme tiredness.
  • changes in personality, such as irritability, apathy (lack of interest) and mood swings.
  • changes in behaviour, such as recklessness and poor judgement.
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How do the symptoms of PSP progress?

What triggers PSP?

What causes PSP? PSP occurs when brain cells in certain parts of the brain are damaged as a result of a build-up of a protein called tau. Tau occurs naturally in the brain and is usually broken down before it reaches high levels. In people with PSP, it isn't broken down properly and forms harmful clumps in brain cells.
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What's the most common age for someone to be diagnosed with PSP?

The condition most commonly affects people over the age of 60. It very rarely develops before the age of 40.
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What is the most common cause of death in PSP?

As PSP progresses, patients are at greater risk for complications, such as choking, pneumonia, head injury and fractures caused by falls. The most common cause of death is pneumonia. With good medical care, however, may patients with PSP live well into their 70s and beyond.
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Do people with PSP sleep a lot?

Patients with PSP may have significant sleep pattern disruptions because the disease affects some neural circuitries that are involved in sleep processing. They may suffer from insomnia, including difficulties with falling and staying asleep.
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How long can someone with PSP live?

Help from a speech and language therapist at an early stage can lower this risk for as long as possible. The average life expectancy for someone with PSP is around six or seven years from when their symptoms start. This time span varies from person to person.
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What famous people have progressive supranuclear palsy?

Featured Personal Stories
  • Patricia Richardson. Laurence Richardson, war hero, corporate executive and late-in-life musician, was another tragic victim of PSP. ...
  • Kathryn Leigh Scott. ...
  • Mary Lou Burhoe. ...
  • Samuel Feldman. ...
  • Carroll Brent. ...
  • Mary Richard. ...
  • Karen Walker.
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Does PSP affect the bowels?

Bladder and Bowel

As people become increasingly immobile as PSP progresses constipation, lack of bowel control and urinary problems may develop.
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How do you care for someone with progressive supranuclear palsy?

In addition to medications, there are various ways to help a person with PSP. Research has shown that physical exercise helps to enhance brain health and improves mood and general fitness. A balanced diet, enough sleep, and limited alcohol intake are other important ways to promote good brain health.
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What is the new medicine for PSP?

AZP2006, a New Promising Treatment for Progressive Supranuclear Palsy patients. Phase 2a Study Assessing Tolerability, Safety and Pharmacokinetics. Effect on Biomarkers and Clinical Readouts.
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Does PSP run in families?

There may also be genes (including MAPT) in which "variants" increase a person's risk to develop PSP. In these cases, the condition itself is not inherited, but a predisposition to developing PSP or a related condition may be inherited.
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What are the end of life symptoms of PSP?

This stage is difficult to detect, but may be indicated by reduced levels of consciousness, inability to eat or drink, acute infection, a fall or major fracture, and rapid and significant weight loss. The end of life stage typically spans 6-8 weeks.
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What are the personality changes in PSP?

Mood and behavior changes may occur. People with PSP may become irritable, forgetful, or depressed, and they may become less interested in things.
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Do you lose your voice with PSP?

Speech changes are common in PSP. Speech can become slurred or speech rate can become too fast, leading to difficulties being understood. Changes in voice quality can also occur: strained or harsh voice, or quiet and breathy voice.
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What kills people with PSP?

Pneumonia, which can be caused by aspiration. Pneumonia is the most common cause of death in people with progressive supranuclear palsy.
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Is PSP worse than Parkinson's?

The biggest difference between the two is that PSP gets worse quicker than Parkinson's disease does. Other differences between PSP and Parkinson's include: If you have PSP, you'll have something called "axial rigidity." This causes you to lean backward and extend your neck.
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Is PSP a form of dementia?

Progressive supranuclear palsy (PSP) is a condition that causes both dementia and problems with movement. It is a progressive condition that mainly affects people aged over 60.
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What disease does Linda Ronstadt have?

However, she later learned that she actually had a Parkinson's-like disorder called progressive supranuclear palsy.
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How rare is PSP?

PSP is considered rare. It is currently estimated that 10 to 12 people per 100,000 are living with PSP. About 30,000–40,000 people are diagnosed with PSP in the United States.
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What are the late stages of PSP?

In the later stages of PSP, symptoms may include:
  • A fixed or startled facial expression due to rigid facial muscles.
  • Decreased interest in previously enjoyable activities.
  • Difficulty swallowing, potentially leading to gagging or choking.
  • Feelings of dizziness.
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